Posted on Sep 13, 2008 | Comments 0
Marfan syndrome is an inherited connective tissue disorder, which is characterized with skeletal, cardiac, aortic, ocular and dermatological and also dural malformations.
It is a very rare disorder and it is estimated that 1 in 5,000 people can have this disorder.
Despite of the race, sex, age and ethnicity, Marfan syndrome can affect anyone and it mainly targets the connective tissues of your body.
This rare disorder can affect different people in different ways. Some of you can have mild symptoms, while others can get serious complications including heart and blood vessel complications.
If you are diagnosed with this disease, implementing certain changes in your routine life style can help you to live quality life. Here are a couple of lifestyle changes that can help you in the treatment of Marfan syndrome.
Include necessary physical activity!
Lack of enough physical activity in your daily routine is the main root cause for the development of various health disorders including Marfan syndrome.
As this particular connective tissue disorder appears in many forms, it is always recommended to get enough physical activity in your regular routine. But, be careful, if you have any heart problems associated with Marfan syndrome; avoid straining your body excessively.
Get genetic counseling before planning for pregnancy!
As Marfan syndrome is an inherited disorder, it is always suggested to get necessary counseling prior to your pregnancy. Pregnant women with Marfan syndrome are suspected to face various complications.
Careful follow up with frequent blood pressure checkups is very crucial to avoid various pregnancy complications. If there is any rapid enlargement in the normal size of aorta, enough bed rest is very essential for you.
Follow necessary measures to prevent endocarditis!
If Marfan syndrome involves heart or any valve of your heart or even if you had any heart surgery, you are more prone to develop various bacterial endocarditis.
Endocarditis mainly occurs when the bacteria enters into your blood stream and causes inflammation to your heart valves. So, to prevent this, take necessary antibiotics prior to surgery.
Get better support!
As Marfan syndrome can affect you in many ways, you can feel angry, sad or scared with the condition. So, it is always suggested to take necessary help from your family and friends.
Regular follow up of medications and health check ups also plays a vital role in the treatment of Marfan syndrome. It is also important to seek proper medical assistance from any experienced physician.
Posted in: Muscle & Bone Disorders